Sept 3 and 5 Diary of a brain issue…

From emails to our prayer group.

This was the beginning of an auto-immune reaction which my oncologist believes Yervoy, a treatment I finished mid 2012 triggered in my stable brain tumor. It caused swelling around a dead tumor in my brain.

Sept 3- Hey all. I am at sprouts. Danny is on his way to get me. I am having flashing lights in my vision terribly. This is the same symptom I had with the brain tumors before. This time it’s much worse. Waiting on a call to see if I need to go to the er. Please pray it’s simple inflammation and not new tumors and that it will go away! We are abandoning a car at sprouts. Danny might need help getting it later. Thanks all. I feel fine, my vision is just incredibly impaired and I’m scared about what this might mean.

We are picking up the kids right now and taking them to Grammie’s school. Then heading to UMC’s ER for an MRI to see what is going on.

UPDATE: MRI results just in. No new lesions in her brain!!!
SO RELIEVED!
I think we’ll be out of here shortly and will pick up the kids from Martha’s parents on the way home. Thank you for lifting us up today. Please continue to pray for our Martha.

Sept 5- Another reason for celebration tonight. I saw an ophthalmologist today and my eyes are fine. There was some suspicion that my symptoms were caused by uvitius, a side effect of immune disorders (which my past and present treatments can emulate.) Thankfully my diagnosis was ocular migraine without pain and there is no reason to follow up at this point. It was quite a scary experience because it was so similar to my brain tumor symptoms, but we are thankful for a clear MRI and eye exam! Oh, and a clear skin check from my favorite TWO dermatologists today!

If only this was really the end of that journey…

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